Help4HD-International.org is proud to announce the launch of
Santa Maria, California, October 25, 2012: Melissa Biliardi, Founder of Help4HDInternational.org has launched a new website to facilitate direct donations to Huntington’s disease (HD)
and Juvenile Huntington’s disease (JHD) researchers, foundations and clinics (RFC’s). This is the first
website resource of its kind. Now you can directly support RFC’s bypassing third party organizations
who take administrative and operational costs from fundraising dollars. Direct donations will allow
RFC’s to continue bench to the bedside research and continuity of care in the clinics without delay.
Foundations provide greater sums of money to facilitate RFC’s. Clinical studies and trials must take
place in order to discover viable treatments or the cure.
Help4HD (BlogTalkRadio) podcasts are provided so that you may listen to, and learn more about
what they are doing for the HD and JHD community. Our scientific researchers are working day and
night to find viable treatments or the cure for Huntington’s disease, but funding has become more
challenging. Researchers work from grants, philanthropic and private donations. Many times research
money dries up and their work ends in the valley of death (VOD), where promising research dies due to
lack of funding. The Food and Drug Administration (FDA) may mandate additional preliminary testing
before they will allow a clinical trial to begin, which usually falls outside a specified grant allocation.
Without private funding, many trials and studies will not take place.
Research4HD.org is positioned to assist the entire community with direct links to these vital
resources who need fostering so that crucial research does not get shelved and precious time is not
wasted. Research4HD is also available on the “Help 4 HD” App as a free download
How to donate directly to Huntington’s Researchers, Foundations and
Clinics: Go to www.Research4HD.org and discover who you wish to
What is Huntington’s disease and Juvenile Huntington’s
Huntington’s disease is a hereditary, degenerative, and terminal brain disease which slowly
diminishes the affected individual’s ability to walk, talk, and reason. In time, the person with HD relies
completely upon others for their personal care and affects the lives of families – emotionally,
psychologically, socially, and economically. HD affects males, females, and knows no ethnic and
racial boundaries. Every child of a person with Huntington’s disease has a 50/50 chance of inheriting
the fatal gene.
Juvenile HD affects younger individuals. When the onset of the disease happens before the age
of twenty, the disease is called Juvenile Huntington’s disease. Individuals who suffer with JHD
experience the same challenges as individuals with HD, however the onset of physical and emotional
symptoms happens earlier in life. These younger individuals experience many additional traumatic
symptoms of Huntington’s disease: epileptic seizures, adverse behaviors, and mental dysfunctions,
decline in scholastics…the list goes on. These JHD Warriors need much more support and resources.
Currently, not many of these vital resources are available, which makes the battle much more difficult!
*Current statistics specify that one out of every 10,000 American has HD. Unfortunately, these
statistics are outdated. We know that so many more individuals in America (and globally) have
JHD/HD, or are at risk.*
Contact: Melissa Biliardi