The Scottish Huntington’s Association wants to tell the story of the devastating impact the degenerative brain disorder Huntington’s disease has on families and how it can help support them.
The Scottish Huntington’s Association (SHA) wants to tell the story of the devastating impact the degenerative brain disorder Huntington’s disease (HD) has on families and how we can help.
Please have a look at our trailer film on this page to give you a better idea of why we need to explain what HD is.
We want to make a longer, 15 minute film about one family’s journey coping with HD, how it affects their lives and the role SHA plays in helping them cope.
Huntington’s is hereditary disease that could affect 5000 people in Scotland. There is no cure. Here’s a quick guide to what the disease is and how it affects people.
We plan to use this film for several purposes to create better understanding of HD.
Video is the best format for demonstrating to new employees and potential volunteers what HD is and why what SHA does is important. The film will also be the centre piece of any educational or fundraising presentations we do to explain HD and SHA’s role in helping improve the lives of people living with the disease.
The money would be used to fund production costs.
SHA relies on donations to carry out its lifeline support which, includes employing specialist nurses and the world’s only HD youth support service.