Help 4 HD International is pleased to announce the First Annual Help 4 HD Symposium to be held July 18-19, 2014, at the Historic Santa Maria Inn in Santa Maria, California. The public is welcome and encouraged to attend, along with HD families, medical professionals, and others interested in HD and the advancement of medical diagnosis, treatment and research.
Huntington’s disease (HD) is an inherited and ultimately fatal brain disorder that affects control of movement, thought and behavior. Every child of an individual with HD has a 50/50 chance of inheriting the mutated gene that causes HD. More than 30,000 Americans have been diagnosed with HD and more than 250,000 others are at risk.
“The purpose of this Symposium is to connect with HD families, introduce them to expert care, research opportunities, and impart hope,” said Help 4 HD International President and CEO, Melissa Biliardi, whose son James was diagnosed with HD seven years ago. “We also want to provide information and educational opportunities to medical professionals who care for our HDpatients and interact with their families.”
At the Welcome Reception on Friday night, July 18, at 7:00 pm, in the Santa Maria Inn’s Kent Room, the public is invited to meet the event’s highly esteemed keynote speakers from top universities and institutions around the country, as well as international HD organization leaders and advocates.
Help 4 HD Symposium registration begins Saturday, July 19, at 8:00 am, followed by the morning’s Speaker Panel from 9:00 to 12 noon. After a picnic lunch in the Santa Maria Inn’s renowned gardens among educational exhibits and displays, the Symposium continues with the afternoon Speaker Panel from 1:00 pm through 5:00 pm.
The Symposium’s panel of distinguished speakers include: Ira Shoulson, MD, Professor of Neurology, Pharmacology at Georgetown University, Founder HSG/PSG; Ray Dorsey, MD,MBA, Professor of Neurology and Co-Director, Center for Human Experimental Therapeutics, Connect.Huntington (Telemedicine Study); Neal Hermanowicz, MD, Health Sciences Clinical Professor of Neurology, Director, Movement Disorders Program, University of California, Irvine; Suzanne Pontow, PhD, Co-Director, Umbilical Cord Blood Collection Program, UCDavis Stem Cell Program; Peg Nopoulos, MD, Professor of Psychiatry, Neurology, Pediatrics, University of Iowa Carver College of Medicine, Kids-HD/Kids-JHD; Auspex Pharmaceuticals, Clinical Trial SD809 (First-HD/ARC–HD); Jan Nolta, Ph.D., Professor Director UC Davis Stem
Source: Santa Barbara Independent