• HOPES – A great site from a group of students at Stanford University, America. This site is full of information about Huntington’s disease, and some cool stuff for kids too.
  • HDLF – A site with lots of information on medical and research aspects of Huntington’s disease, along with a forum to ask questions.
  • HD free with PGD – A nice site set up by a young woman to provide advice, information and support to those looking/going through PGD.
  • Predictive testing for HD – A website with lots of information specifically on predictive testing for Huntington’s disease.
  • Independent Swedish HD Site – Information in Swedish about HD
  • EHDN – The Euro-HD Network website, with lots of information about research studies and study sites throughout Europe.
  • IHA – The International Huntington’s Association’s website. A worldwide organisation that provides support to Huntington’s Disease Associations.
  • CHDI – The Cure Huntington’s Disease Initiative website. The CHDI organisation puts in huge amounts of funds annually to support the search for treatments and a cure for Huntington’s disease.
  • HD Foundation – The Huntington’s Disease Foundation have been supporting Huntington’s disease research for many, many years.
  • HDBuzz – A website for people from families affected by Huntington’s disease to learn about the latest research in an easy, understandable manner.
  • Predict-HD – The official Predict-HD website, for those interested in getting involved with the research study.
  • Enroll-HD – The official website for Enroll HD, a worldwide research study that almost everybody from a family affected by Huntington’s disease can join and participate in.
  • HD Science Blog – Nacho is a neuroscientist working to find for Huntington’s disease. He blogs regularly about therapies and developments in HD research.
  • YPAHD – The Huntington’s Society of Canada’s official youth group, where Canadian youth can join up and receive support.
  • Our HD space – A wonderful website created by a young person in Australia to provide support to youth in Australia.
  • NYA – The Huntington’s Disease Society of America’s official youth group, where American youth can join up and receive support.
  • Scottish HD Youth – The Scottish HDA’s youth website
  • The Peter Earl Association – New charity from NSW, Australia, set-up to support young people impacted by HD



  • HDSA JHD guide – Huntington’s Disease Society of America Guide to JHD
  • HSC JHD guide – Huntington’s Society of Canada Guide on JHD
  • JHD Families – JHD Families site in the UK (including forum)
  • JHD Kids – JHD Kids Site
  • HDAC JHD guide – Huntington’s Disease Advocacy Centre pages on Juvenile HD
  • Hopes JHD guide – Hopes pages from Stanford University on Juvenile HD
  • EHDN JHD working group – European Huntington’s Disease Network working group on Juvenile HD
  • JHD book – Juvenile Huntington’s Disease: and Other Trinucleotide Repeat Disorders










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