What is the HDYO?
The Huntington’s Disease Youth Organisation is an international non-profit voluntary organisation set up to specifically provide support for young people around the world impacted by Huntington’s disease.

How is HDYO run?
HDYO is special – it is run entirely by young people for young people. Whether it is the HDYO board, which contains young people who are from families affected by Huntington’s disease, or the HDYO translators who translate all HDYO’s material – young people are involved and at the heart of everything HDYO does. At HDYO we take great pride in empowering more young people to get involved with the organisation. HDYO also calls upon a vast army of professionals at times when necessary.

What are HDYO’s goals?
HDYO’s goals are simple but challenging. We aim to provide support to young people (kids, teens and young adults) impacted by Huntington’s disease around the world. We seek to drastically improve the amount of quality information provided to young people and their families with regards to Huntington’s disease.

Also, HDYO looks to improve support for young people both locally and globally, by collaborating with national Huntington’s disease associations around the world to improve youth support in their area as efficiently and appropriately as possible.

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